The Adult Congenital Heart Association (ACHA) will hold its Nashville Walk for 1 in 100 on Saturday, September 28, 2019 at Centennial Park. ACHA, the only nonprofit in the country dedicated solely to the unique needs of the 1.4 million adults born with heart defects, has set a goal of 300 walkers and $50,000 raised at this event. The Nashville Walk for 1 in 100 is one of 14 similar events ACHA is hosting nationwide in 2019 to raise money for outreach, education, research and more.
"Walk for 1 in 100 helps to energize our network of congenital heart disease (CHD) patients, supporters, and medical professionals in communities across the country and to increase knowledge of the specialized care that those born with heart defects need throughout their lifetimes," said Mark Roeder, ACHA President and CEO. "Funds generated through the Nashville Walk will support the ACHA ACHD Accreditation Program, which is working to elevate and standardize care for the adult congenital heart disease population nationwide. In addition, Walk for 1 in 100 helps to fund cutting-edge medical research, advocacy efforts and various educational and outreach initiatives. We look forward to meeting new friends in all our Walk for 1 in 100 communities this year!"
Walk for 1 in 100 was created to empower all of those who were born with a heart defect, their loved ones, and the medical community that cares for them, such as Renee Riege of Villains With Heart. Riege was born in 1972 with tetralogy of Fallot (TOF), "in a place where no one went to specialist and the county doctor is the only doctor you ever saw." Her TOF was undiagnosed until she was two years old and she didn't have a full repair until age four. At the time, her life expectancy was believed to be her 40s at best--and then, everything changed when she came into the care of an adult congenital heart disease (ACHD) specialist.
"Because of advancements in ACHD care, and finding an ACHD certified doctor, my life expectancy has greatly improved," said Riege. "I walk for all the babies who, for whatever reason, don't get the medical attention they need at birth, and I walk to raise awareness for the need to ongoing adult care from ACHD certified doctors. I am a heart warrior."
The 1-mile walk at Centennial Park will include refreshments, music/entertainment and fun activities for all ages.
For more details or to register for a walk, please visit www.walk1in100.org.